Parker Pearman, CON College of Nursing Research
Cancer educational materials disseminate complex conceptual health information in print-heavy formats and can be difficult to understand especially when the most recent National Assessment of Adult Literacy (NAAL) survey reported that 88% of adults are limited by their health literacy skills. As a result, young women with breast cancer may be limited in their understanding of cancer educational material. Specifically, young AA women with breast cancer may be at even greater risk for their understanding of cancer educational materials given the persistent disparities experienced by this community. This may be especially important during survivorship when routine interactions with healthcare providers become less frequent.
Women may feel they are now alone to deal with their physical and psychosocial survivorship issues, causing them to rely more heavily on educational materials. However, few studies have evaluated the health literacy level of young AA women, the reading level and actionability of cancer educational materials, and survivors’ perceptions of the usefulness of the materials to meet their specific healthcare needs. We propose an exploratory, descriptive qualitative study using focus groups to obtain an in-depth patient-centered description of the usefulness of cancer educational materials as a tool in the dynamic patient-centered communication process.
What does participation involve?
You must participate in a Zoom focus group.
Anywhere in the U.S. and virtual.
How can I sign up for this study?
You can sign up for this study if you match all of these main criteria and complete the consent form. Please read this list carefully.
- Self-identified Black or African-American woman 18 – 45 years of age
- Can read and write in English
- Diagnosed with the BRCA gene
- Have completed treatment within the last 5 years