Symptom-Burden-and-Cognitive-Function-in-Older-Breast-Cancer-Survivors-survey

Researcher
Jungeun Lee, PhD, MSN, RN, University of Rhode Island College of Nursing  

Summary
Research has shown that of the long-term symptoms of cancer treatment that survivors experience, cancer-related fatigue is one of the most burdensome, along with sleep disturbance, pain, anxiety, and depression. The purpose of the study is to learn more about the impact of these symptoms, in addition to memory and quality of life for breast cancer survivors who are 65 and older, so that researchers can develop ways to decrease symptom burden in future research studies.

What does participation involve?
If you choose to participate, you will complete a survey (either online or on paper) that will ask questions about health-related challenges you may be experiencing, your cancer history, your memory, and your quality of life. The survey will take between 40-50 minutes to complete and your answers to the questions will be kept confidential.

Participation will also involve wearing an activity monitor on your wrist for 7 days. During that time, you will be asked to answer two short questionnaires, twice per day, that will take between 5-10 minutes to complete. The questionnaires will ask about your sleep and symptoms of fatigue. For this part of the study, you will receive a package by mail containing a sleep diary (which will be used to log your answers to the short questionnaires) and an activity monitor with instructions. After 7 days, you will mail the activity monitor and the diary back to the research team using the pre-paid envelope included in the original package.

Participants will receive $30 after completion of the study.

This research has been approved by The University of Rhode Island Institutional Review Board.

Where?
Anywhere in the U.S.

How can I sign up for this study?

You can sign up for this study if you match all of these main criteria. Please read this list carefully.

  • You are female (assigned at birth) aged 65 years or older.
  • You have been diagnosed with stage 0-III breast cancer.
  • You received any type of cancer treatments within the past 5 years.
  • You have not been treated for any other type of cancer within the past 5 years.
  • You do not have a history of stroke, head injury, severe mental illness (such as schizophrenia, bipolar disease, or obsessive-compulsive disorder), or a neurodegenerative disorder (such as Alzheimer’s or Parkinson’s disease).
  • You are able to speak, read, and write in English.
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